Big Changes, Big Questions.

After another series of tests, and taking my hip, various doctors have talked amongst themselves and decided that my treatment is not currently working. As such, the transplant I’ve been waiting for has been cancelled.

Where do we go from here? I’m not sure. There are some possibilities, and we’re looking at each of them, but as of 4:30am on Thursday, November 9th, there is no plan. I know some of my friends, family, and co-workers like to know what the plan is so that you can help, but that’s just not something we have right now.

tidal

Artist’s rendition of the current plan

At the very least, this is going to involve starting over from step one. It may involve flying to special hospitals in other cities, or experimental drugs, or shrinking myself down to a subatomic level, get injected into my bloodstream, and find each individual t-cell and stomp it’s ass.

(Wait… if I was subatomic… and how would I inject me into me? This one may need a second draft)

Having said all that, due to the history I have with these doctors, there’s a 10% chance one of them will call me tomorrow to tell me I have a transplant scheduled in ten minutes, only they need to turn all my toes backwards. I am becoming more and more convinced that my lead doctor is actually Rocket Raccoon.

That’s all the information I have for now. If you’re worried about me, please stop. I’m fine. If anyone could use your sympathy, it’s my wife – She’s had to deal with the brunt of all of this. There’s nothing “brave” or “strong” about having cancer, I just lay here. It’s the woman who makes sure I take every last medication, tracks every appointment, drives me to every appointment, checks on me throughout the night, pushes doctors for answers, and still finds the time and energy to take care of a house of four.

As for me, all I have to do is keep getting up every morning, no matter what, and that’s not stopping any time soon.

The Way Things Is (as of November 5th)

I’m out of the hospital and back home, with a fancy new metal hip joint and everything.

I was admitted early Tuesday morning, and had the surgery pretty quickly. I then woke up about ten hours later with a whole lot of new sensations and feeling like a cotton-headed ninny muggins.

Y’know how each hip joint consists of a ball and a socket for the ball to rotate in? If not, maybe go search google for “hips” and click on the first link that doesn’t have the word Shakira in it.

TheHipJoint-Futurama.png

Anyway, it turns out my cancer ate away so much of of the ball of my left hip, that it was ready to crack any second. This explains all the pain I’ve been having in my left hip the past few months.

So my orthopedic oncologist destroyed that ball, and replaced it with a new metal ball joint. That metal ball joint will use the same ‘ol socket my hip has had all these years, because we haven’t spotted any problems there.

She also scraped out all of the cancerous material from the damaged joint, and sent it out for testing. We don’t have every test result back yet, but so far it looks like it an old dead tumor, and not new cancerous activity.

So I spent Tuesday, Wednesday, Thursday, and Friday at the hospital, working with both Physical Therapy (PT) and Occupational Therapy). Perhaps you, like me, did not realize that those were two separate things. But alas, they are, and they often want you to do the same exercise(s)  over and over again.

After four days of trying my charming best, and some light cajoling, KU finally agreed to turn me loose. Haley came and picked me up, and now I’m back in my wonderful little house with my wonderful little family.

I had a lot of meetings planned for this past week, that were wiped out by this emergency hip surgery, so I’m trying to get them re-scheduled as soon as possible. I’m sure I’ll have some updates to my scheduled by lunchtime Monday.

The pain isn’t too bad right this second, but if I move my hip in any sort of unusual way the pain reminds me that it is very important not to do that.

I missed blogging while I was in the hospital, and so I have a bunch of things I need to circle back around on. Things like Halloween, and the fact that my son Logan was selected as first chair for Trombone in the Kansas City Metro District Honor Band. That may sound like a bunch of gibberish, but trust me, it’s a pretty amazing accomplishment. We’re all so excited for him.

I think that’s everything for now, just wanted to try and get caught up with some things. I’ll hopefully have the time and energy to post more often this coming week.

Manamanah.

Doo do do doo do.