The Way Things Is (as of September 27th)

Things are going about as well as can be expected at the moment.

As of my last PET scan, all of the visible cancer has been eradicated except for the original spot in my right femur. The fact that this spot hasn’t been taken out by my chemotherapy worried the oncologist enough to change my treatment regimen. The new drugs are much more powerful, and are causing a lot more fatigue than I’d had previously. For a few days after my treatment started, I was barely able to get out of bed. At one point I tried to play a video game and found that the tips of my fingers were too fatigued to work correctly, which was a surprise.

My legs and hips are in a lot of pain, but I have medication to help manage it. I am getting a bit concerned about the amount of pain medication I’ve had to take lately, but I’ve always been paranoid about prescription drugs. I’m currently taking between 10mg and 30mg of percocet each day, so we’ll see how that effects me long term.

Psychologically, I’ve taken a bit of a hit lately. I’ve been able to keep up a pretty positive attitude about all of this, but a recent talk with the staff who are managing my bone marrow transplant shook me a bit. The doctor casually mentioned that the transplant means there’s a 10-20% chance that I’ll be dead before Christmas, which something of a shock. He later walked it back a bit, saying that those numbers included all transplant patients, and I was on the younger and healthier end, but still… those numbers aren’t something I like thinking about.

My next round of chemotherapy starts next Monday, and two weeks after that I’m going in for more PET scans and tests. The results of these tests will determine whether or not we can proceed with the transplant, or if I will need to start a new chemo regimen with the addition of radiation therapy. I should know a lot more then.


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